Dominic Cummings

[pr1]

55 million citizens...? When was this written?

And are these the same people complaining about the lack of planning and reliable statistics around the Covid pandemic I wonder?

of England

[Scoobos]

In other news - Nhs will sell off personally identifiable patient info unless you opt out in the next few weeks. And if you opt out they will still share your info, just without name/id.

No they wont, they will never sell data.

"NHS Digital will never sell your data" - Overview – Choose if data from your health records is shared for research and planning - NHS (www.nhs.uk)

Also, dont we WANT NHS Digital to make best use of the information it has, regarding patient safety etc?

The NHS , whatever you may think of it, has strong ethics and is not a private sector org. I'm a PROPER tinfoil hat wearer with information and tech - but see no reason to opt out of the details of my health, patient pathways and outcomes being stored and used to improve the services provided.

[AtW]

Yes, they won’t sell it - they will just license it to third private parties.

”NHS Digital, which runs the health service’s IT systems, confirmed the plan to pool together medical records from every patient in England who is registered with a GP clinic into a single lake that will be available to academic and commercial third parties for research and planning purposes.”

https://www.ft.com/content/9fee812f-...c-aeb25d3dd748

So much for GDPR

[malvolio]

Yes, they won’t sell it - they will just license it to third private parties.

”NHS Digital, which runs the health service’s IT systems, confirmed the plan to pool together medical records from every patient in England who is registered with a GP clinic into a single lake that will be available to academic and commercial third parties for research and planning purposes.”

https://www.ft.com/content/9fee812f-...c-aeb25d3dd748

So much for GDPR

GDPR only applies to identifiable personal details, not aggregated data. The research is not interested in individuals, but populations.

[malvolio]

of England

OK, fair enough. The UK population is 66 and a bit millions. There are 10 or so million in Scotland (5.4m), Wales (3m) and Non Iron (1.8m) combined. So it's wrong, but not by that much.

[minestrone]

Patient records just now are largely sitting on hard drives in surgeries with back up tapes that probably are saving nothing.

It's a total disaster and needs to be centrally stored.

It's comical but a hard drive getting full basically shuts them down for days. Happens a fair bit.

[mallisarealperson]

I would not be surprised if the average person did not really care.

So many now are happy to have an amazon listening device in there homes.

And with WhatsApp etc. Peoples data is everywhere.

[AtW]

GDPR only applies to identifiable personal details, not aggregated data. The research is not interested in individuals, but populations.

It won’t be aggregated - FTFA:

”Data that directly identifies patients will be replaced with unique codes in the new data set, but the NHS will hold the keys to unlock the codes “in certain circumstances, and where there is a valid legal reason”, according to its website.”

Medical histories pretty unique - should be easy to identify when ransomware hackers leak that data

”Patients have until June 23 to opt out by filling in a form and taking it to their GP before their historical records will become a permanent and irreversible part of the new data set” - totally against GDPR

It’s fooking full medical histories FFS.

What’s next - store all confessions in Vatican for analysis?

[malvolio]

It won’t be aggregated - FTFA:

”Data that directly identifies patients will be replaced with unique codes in the new data set, but the NHS will hold the keys to unlock the codes “in certain circumstances, and where there is a valid legal reason”, according to its website.”

Medical histories pretty unique - should be easy to identify when ransomware hackers leak that data

”Patients have until June 23 to opt out by filling in a form and taking it to their GP before their historical records will become a permanent and irreversible part of the new data set” - totally against GDPR

It’s fooking full medical histories FFS.

What’s next - store all confessions in Vatican for analysis?

How much epidemiological knowledge can you gain from looking at an individual record? On a need to know basis the NHS already owns the data and the personal details anyway, so that's not an issue. Research will be done against specific data items such as symptoms, outcomes, diseases, inoculations, whatever: individual records are of no value at all.

As for leakage, how secure is Facebook, CUK, WhatsApp, Twitter or any number of service providers that you use every day...?

I do have a large roll of tin foil if that would help.

[AtW]

As for leakage, how secure is Facebook, CUK, WhatsApp, Twitter or any number of service providers that you use every day...?

They don't hold detailed medical records.