Reply to: Son diagnosed with Epilepsy - Anyone have kids with this?

[FiveTimes]

There is a chance that he may grow out of them later in life, maybe towards his teens, but I'm just hoping if we do decide to go ahead with the medication - and I can't really see any other option - that it doesn't take away the outgoing personality he has now and makes him 'zombiefied'

The meds have come on leaps and bounds now so hopefully he wont be too affected

[ChrisPackit]

Thanks for the advice chaps, very useful and nice to know there are kind and thoughtful people out there.

He's 6 now and had 8 of these seizures so far, so it's not like it's a daily occurence which I can be grateful for that I guess. Up until now, they had been put down to febrile convulsions of which I had a few when I was younger and so did my father. They're the kind of thing you tend to grow out of by the time you reach 6 or 7, but in this case the quack suggested there's an 80% chance he will have more. He's had one at school quite recently and they handled it very well, one once whilst on a holiday to Egypt last year, and the rest at home.

There is a chance that he may grow out of them later in life, maybe towards his teens, but I'm just hoping if we do decide to go ahead with the medication - and I can't really see any other option - that it doesn't take away the outgoing personality he has now and makes him 'zombiefied'

[JamJarST]

It's not the same, what I used to get is an overwhelming feeling of complete detachment, and an amazing sense of peace and understanding, rising from the pit of my stomach. Lose all sense of time but I knew I was still functioning, talking, walking, bit like I was two people at once.

Read Neil Youngs bio a few years back and he described his pre grand mal aura and they fitted mine perfectly. Honestly I miss them, they were immensely pleasurable and the peace and all! I have suffered with migraine too, shimmering lights and massive pain after, oddly enough now I still get the shimmering lights, but no headache or pain.

The two things are radically different though, to me anyway.

Yeah sorry that does sound totally different.

[Support Monkey]

here it is, worth a look

Food Hospital - Episode Six

Visitors to The Food Hospital this week include Charlie, 4, from Epsom, who has recently developed what doctors call a ‘catastrophic’ case of epilepsy. He has up to 300 seizures a day and his parents have been told that his condition is so severe that, in the future, he might not be able to recognise them. Charlie is prescribed the ketogenic diet, a radically high fat diet that mimics starvation and switches the metabolism in the body so that fats are used as fuel instead of carbohydrates. Will this new diet help his condition and put his parents at ease?

[Fishface]

Persistent stomach pains. When we went to the GP, we also mentioned that she hasn't been growing well. The GP sent her for a series of blood tests, which included one for coeliac. We are lucky to have such a good GP as that is good medical practice - many kids spend years looking for an explanation.

Why do you ask?

My 4 year old can't eat bread without being constipated - don't think it is coeliac - no bread and he's ok.

[speling bee]

could I ask how you discovered this in the first place?

Persistent stomach pains. When we went to the GP, we also mentioned that she hasn't been growing well. The GP sent her for a series of blood tests, which included one for coeliac. We are lucky to have such a good GP as that is good medical practice - many kids spend years looking for an explanation.

Why do you ask?

[stek]

Son diagnosed with Epilepsy - Anyone have kids with this?

It's not the same, what I used to get is an overwhelming feeling of complete detachment, and an amazing sense of peace and understanding, rising from the pit of my stomach. Lose all sense of time but I knew I was still functioning, talking, walking, bit like I was two people at once.

Read Neil Youngs bio a few years back and he described his pre grand mal aura and they fitted mine perfectly. Honestly I miss them, they were immensely pleasurable and the peace and all! I have suffered with migraine too, shimmering lights and massive pain after, oddly enough now I still get the shimmering lights, but no headache or pain.

The two things are radically different though, to me anyway.

[JamJarST]

I used to get pre fit auras not the actual fit. I was tested and said I didn't have epilepsy and not to worry but I did have the auras so I'm sure I had it in some form. Does you son get them?

That sounds like a migraine with aura to me. I get them from time to time and often do not suffer any pain.

[MyUserName]

My daughter has had various tests for epilepsy and they discovered that she has Aspergers syndrome instead.
However, one of my best mates is epileptic and it has very little impact on this life. He drives, he works, he sword fights, he goes to the pub etc.

If he has a fit he will get an automatic driving ban for a couple of years but that is it. However, he can feel fits coming a mile off and just goes to have a lie down. I think this has happened a handful of times in the 12 years I have known him.

The odds are that your familiy will simply incorporate this into your routines and after a few years it will just be one of those things you do. Like we have to explain everything that is going to happen in the day to my daughter in the morning, including the order of any specific events and who is likely to be present etc.

[Fishface]

My 4 year old is just awaiting a 99% certain diagnosis of coeliac disease,

could I ask how you discovered this in the first place?

[Gentile]

Looking for some reassurance I guess as my 6 year old son got diagnosed with Epilepsy after many months of tests.

Glad in a way that we've got to understand what's been happening, but heart broken about the potential life long medication and the impact on his life i.e. driving a car later in life etc etc.

Would be keen to hear from anyone on here who has had similar experiences or could offer any advice.

I've no advice or experience to offer, but I'm sorry for your troubles.

I've only known one person with epilepsy, and that was a teenager whilst I was one too. They got on and lived their lives OK. There's quite a lot they can do to control the problem with medication.

[administrator]

Sorry to hear your news. My wife's sister was diagnosed with epilepsy at an early age, very shocking for all from the accounts I have heard from her family and a hard time for all of them. She has been on med's ever since but this has controlled the seizures and she has led a very normal life. She has driven for years so not sure if she did get off the meds later in life or not...

Fingers crossed they get the treatment right for your little one quickly.

[speling bee]

Neil Young is epileptic, he's done rather well!!

List of people with epilepsy - Wikipedia, the free encyclopedia

[eek]

Don't panic and good luck.

Has his school been informed and is appropriate training in hand? also make sure its properly documented and "statemented" as it will make life a lot easier later on (plus you'll have your first choice of secondary school without trying).

[BlasterBates]

Looking for some reassurance I guess as my 6 year old son got diagnosed with Epilepsy after many months of tests.

Glad in a way that we've got to understand what's been happening, but heart broken about the potential life long medication and the impact on his life i.e. driving a car later in life etc etc.

Would be keen to hear from anyone on here who has had similar experiences or could offer any advice.

A friend of mine was an epileptic and lead a perfectly normal life, if she forgot to take her medication she would have a fit and didn't remember a thing when she came to, a bit like someone had hit the delete button.

From what I can see, as long as it is controlled with medication nothing to worry about.