Reply to: Care.data scrapped

[barrydidit]

In Turkey they put all your giblets in a plastic bag

mmmmm Turkey..

[Support Monkey]

In Soviet Union I had paper based illness history paper thingy that was usually kept in hospital I was frequent to see a "GP" and if I had to move to some other place I'd take that thingy with me.

It's your problem to keep it safe when you taking it out with you.

Simples.

In Turkey they put all your medical records and x-rays in a plastic bag and you carry them from department to department, they just add to your plastic bag as you go

[vetran]

you're russian?

yeah he is AssCretin's mail order bride.

[SueEllen]

yes politics is inherently corrupt and used as an emotive political point scoring tool

I don't know what the right answer is but I'd want an NHS that costs less and operates efficiently whilst being apolitical

Some parts of the NHS can't cost any less e.g. 111, GP services, mental health services especially for children. One of the main issues is that services the NHS relies on e.g. social care have been cut so they can't discharge some patients.

[SueEllen]

why ???

should be centralised & properly secured + monitored.

Local GPs whilst well meaning are not likely to be competent to do that.

It is actually already requirement of NHS England that patients should be able to log on online and see part of their electronic records e.g. test results. It's up to each GP practice to sort it out, the same way GP practices have online appointment booking and repeat prescription services. (In reality they all use the same software.)

It is not centralised because people are hardly likely to hack into all individual practices in an area. How many practices have someone broken into and stolen paper records?

If it was centralised it would cost more and we know what happens with government IT projects...

[filthy1980]

One of the main issues with the anonymous method the care records was going to use is that it wasn't that anonymised so it is actually possible to work out who certain people are due to age group and other characteristics if you had access to some of full the data sets.

Another issue was policing the system. Banks already have procedures in place to stop staff looking at account information of family members and famous people but the NHS couldn't guarantee they could get such as system in place. While this isn't a problem for some people others don't want their neighbours to know about their STIs, abortions, inherited conditions, etc.

In regards to the government considering the tricks some contractors use to get out of contracts, it would be possible for a drug company to use the data and find some way to legally wiggle out of paying the NHS for our data.

yes politics is inherently corrupt and used as an emotive political point scoring tool

I don't know what the right answer is but I'd want an NHS that costs less and operates efficiently whilst being apolitical

[stek]

you're russian?

His Russian what?

Soviet doesn't mean Russian anyway, Stalin was Georgian and Krushchov was Ukrainian (I think).

[stek]

In Soviet Union I had paper based illness history paper thingy that was usually kept in hospital I was frequent to see a "GP" and if I had to move to some other place I'd take that thingy with me.

It's your problem to keep it safe when you taking it out with you.

Simples.

The current Mrs Stek has hers from the time she went back home (with a wicked cough), stupidly went ice-skating and collapsed with suspected pneumonia.

[diseasex]

In Soviet Union I had paper based illness history paper thingy that was usually kept in hospital I was frequent to see a "GP" and if I had to move to some other place I'd take that thingy with me.

It's your problem to keep it safe when you taking it out with you.

Simples.

you're russian?

[vetran]

Nope.

GPs surgeries should be allowing patients to get their own records online. Most haven't sorted it out.

why ???

should be centralised & properly secured + monitored.

Local GPs whilst well meaning are not likely to be competent to do that.

[SueEllen]

I'm usually against big government and mass data collection

but with this I can see the benefits, especially if the data can be anonymised

there's no doubt that receiving care from the NHS is hugely slowed down just by the right people waiting for the right paperwork from another part of the same organisation

and if you have access to a dataset of millions of records with samples of tens of thousands of illnesses, cleaver people can use that data to figure out new ways of treating disease and illness

the main beneficiaries of such data would be the large drug companies who would no doubt bite the hands off the NHS to get their hands on it, but I can't think of any better leverage for the NHS then to say to Pfizer / GSK etc "you can have access to our data but we get 80% reduction on the drugs we purchase from you" or even a share of the profits from drugs developed using this data.

but typically governments and bureaucratic organisations can't get the tulip together to see the bigger picture

One of the main issues with the anonymous method the care records was going to use is that it wasn't that anonymised so it is actually possible to work out who certain people are due to age group and other characteristics if you had access to some of full the data sets.

Another issue was policing the system. Banks already have procedures in place to stop staff looking at account information of family members and famous people but the NHS couldn't guarantee they could get such as system in place. While this isn't a problem for some people others don't want their neighbours to know about their STIs, abortions, inherited conditions, etc.

In regards to the government considering the tricks some contractors use to get out of contracts, it would be possible for a drug company to use the data and find some way to legally wiggle out of paying the NHS for our data.

[SueEllen]

What was the thing I just signed up to? EMIS or something..

It was mainly so I could order a repeat prescription online, but it has all my medical records surprisingly going all the way back to the first inocculations I had as a 6 month old, though it doesn't have much details.

Nope.

GPs surgeries should be allowing patients to get their own records online. Most haven't sorted it out.

[VectraMan]

What was the thing I just signed up to? EMIS or something..

It was mainly so I could order a repeat prescription online, but it has all my medical records surprisingly going all the way back to the first inocculations I had as a 6 month old, though it doesn't have much details.

[filthy1980]

I'm usually against big government and mass data collection

but with this I can see the benefits, especially if the data can be anonymised

there's no doubt that receiving care from the NHS is hugely slowed down just by the right people waiting for the right paperwork from another part of the same organisation

and if you have access to a dataset of millions of records with samples of tens of thousands of illnesses, cleaver people can use that data to figure out new ways of treating disease and illness

the main beneficiaries of such data would be the large drug companies who would no doubt bite the hands off the NHS to get their hands on it, but I can't think of any better leverage for the NHS then to say to Pfizer / GSK etc "you can have access to our data but we get 80% reduction on the drugs we purchase from you" or even a share of the profits from drugs developed using this data.

but typically governments and bureaucratic organisations can't get the tulip together to see the bigger picture

[AtW]

In Soviet Union I had paper based illness history paper thingy that was usually kept in hospital I was frequent to see a "GP" and if I had to move to some other place I'd take that thingy with me.

It's your problem to keep it safe when you taking it out with you.

Simples.