Charlie Gard

[MarillionFan]

It looks like it's going back to court.

Charlie Gard case: Great Ormond Street in new court bid - BBC News


I don't know what the rights and wrongs are, but Trump and Pope should keep their oars out.

Not impressed by GOS. Basically they've crapped themselves under pressure and referred it back to someone else to cover their arses.

[northernladyuk]

It looks like it's going back to court.

Charlie Gard case: Great Ormond Street in new court bid - BBC News


I don't know what the rights and wrongs are, but Trump and Pope should keep their oars out.

Seven clinicians and researchers, including the US doctor, signed a letter explaining that the treatment would be experimental for Charlie's particular condition.

They claim that "ideally" the treatment would first be tested on mice but state that, in Charlie's case, there is not time for such a trial.

WTF?

[northernladyuk]

Not impressed by GOS. Basically they've crapped themselves under pressure and referred it back to someone else to cover their arses.

I am sure they will take that into consideration when they conduct their case review.

[MarillionFan]

WTF?

WTF what? What part of chance / lifeline / golden opportunity doesn't make sense to a desperate parent.

[NotAllThere]

I just couldn't understand how in a respected paper in this day and age religion should have anything to do with deciding if treatment should or should not be given.

Why can't you understand? Are you clinically thick? While you may have an aversion to anything that smacks of religion, the majority of people on this planet don't. Or are you one of those people who are entirely incapable of comprehending a world view they don't personally hold? Given that apparently you believe there are any respected papers still around, your opinion seems of little value.

Only one question. Is the treatment of overall benefit to the child or not?

Doctors say no. Parents say yes. If it's 60/40 that doctors or right, I would think the parents wishes would take precedence. It it's 99/1, then I'm with the doctors.

They claim that "ideally" the treatment would first be tested on mice but state that, in Charlie's case, there is not time for such a trial.

We have laws against such things for very good reasons.

[northernladyuk]

Why can't you understand? Are you clinically thick? While you may have an aversion to anything that smacks of religion, the majority of people on this planet don't. Or are you one of those people who are entirely incapable of comprehending a world view they don't personally hold? Given that apparently you believe there are any respected papers still around, your opinion seems of little value.

Doctors say no. Parents say yes. If it's 60/40 that doctors or right, I would think the parents wishes would take precedence. It it's 99/1, then I'm with the doctors.

Generally how it works, with a bias towards active treatment. But serious cases are treated differently. Courts do not intervene when a parent refuses consent for a routine vaccination. I would guess that they do if consent is refused for a child for a vaccination that is essential because of a serious health condition. If an adult with capacity refused in such circumstances, it would be their decision would be respected.

So 99/1 for a minor decision would not be a matter for the courts, all other things being equal.

[SueEllen]

Doctors say no. Parents say yes. If it's 60/40 that doctors or right, I would think the parents wishes would take precedence. It it's 99/1, then I'm with the doctors.

Luckily then you aren't the judge. The child's rights are paramount and that includes protecting them from the beliefs of their parents if it would cause him harm.

[NotAllThere]

Luckily then you aren't the judge. The child's rights are paramount and that includes protecting them from the beliefs of their parents if it would cause him harm.

Erm.... I agree with you. I was just suggesting that where it's uncertain enough, the edge should be given to the parents. The actual numbers are irrelevant.

[mudskipper]

Interesting write up https://www.facebook.com/DrRaviJ/posts/1911001392495905

[SueEllen]

Interesting write up https://www.facebook.com/DrRaviJ/posts/1911001392495905

This is about adults - linky - but likely happens in children. However studies exclude them due to ethical concerns.