Care.data scrapped

[AtW]

Well it's a good day to bury bad news.

It's EUs fault!!!

[AtW]

In Soviet Union I had paper based illness history paper thingy that was usually kept in hospital I was frequent to see a "GP" and if I had to move to some other place I'd take that thingy with me.

It's your problem to keep it safe when you taking it out with you.

Simples.

[filthy1980]

I'm usually against big government and mass data collection

but with this I can see the benefits, especially if the data can be anonymised

there's no doubt that receiving care from the NHS is hugely slowed down just by the right people waiting for the right paperwork from another part of the same organisation

and if you have access to a dataset of millions of records with samples of tens of thousands of illnesses, cleaver people can use that data to figure out new ways of treating disease and illness

the main beneficiaries of such data would be the large drug companies who would no doubt bite the hands off the NHS to get their hands on it, but I can't think of any better leverage for the NHS then to say to Pfizer / GSK etc "you can have access to our data but we get 80% reduction on the drugs we purchase from you" or even a share of the profits from drugs developed using this data.

but typically governments and bureaucratic organisations can't get the tulip together to see the bigger picture

[VectraMan]

What was the thing I just signed up to? EMIS or something..

It was mainly so I could order a repeat prescription online, but it has all my medical records surprisingly going all the way back to the first inocculations I had as a 6 month old, though it doesn't have much details.

[SueEllen]

What was the thing I just signed up to? EMIS or something..

It was mainly so I could order a repeat prescription online, but it has all my medical records surprisingly going all the way back to the first inocculations I had as a 6 month old, though it doesn't have much details.

Nope.

GPs surgeries should be allowing patients to get their own records online. Most haven't sorted it out.

[SueEllen]

I'm usually against big government and mass data collection

but with this I can see the benefits, especially if the data can be anonymised

there's no doubt that receiving care from the NHS is hugely slowed down just by the right people waiting for the right paperwork from another part of the same organisation

and if you have access to a dataset of millions of records with samples of tens of thousands of illnesses, cleaver people can use that data to figure out new ways of treating disease and illness

the main beneficiaries of such data would be the large drug companies who would no doubt bite the hands off the NHS to get their hands on it, but I can't think of any better leverage for the NHS then to say to Pfizer / GSK etc "you can have access to our data but we get 80% reduction on the drugs we purchase from you" or even a share of the profits from drugs developed using this data.

but typically governments and bureaucratic organisations can't get the tulip together to see the bigger picture

One of the main issues with the anonymous method the care records was going to use is that it wasn't that anonymised so it is actually possible to work out who certain people are due to age group and other characteristics if you had access to some of full the data sets.

Another issue was policing the system. Banks already have procedures in place to stop staff looking at account information of family members and famous people but the NHS couldn't guarantee they could get such as system in place. While this isn't a problem for some people others don't want their neighbours to know about their STIs, abortions, inherited conditions, etc.

In regards to the government considering the tricks some contractors use to get out of contracts, it would be possible for a drug company to use the data and find some way to legally wiggle out of paying the NHS for our data.

[vetran]

Nope.

GPs surgeries should be allowing patients to get their own records online. Most haven't sorted it out.

why ???

should be centralised & properly secured + monitored.

Local GPs whilst well meaning are not likely to be competent to do that.

[diseasex]

In Soviet Union I had paper based illness history paper thingy that was usually kept in hospital I was frequent to see a "GP" and if I had to move to some other place I'd take that thingy with me.

It's your problem to keep it safe when you taking it out with you.

Simples.

you're russian?

[stek]

In Soviet Union I had paper based illness history paper thingy that was usually kept in hospital I was frequent to see a "GP" and if I had to move to some other place I'd take that thingy with me.

It's your problem to keep it safe when you taking it out with you.

Simples.

The current Mrs Stek has hers from the time she went back home (with a wicked cough), stupidly went ice-skating and collapsed with suspected pneumonia.

[stek]

you're russian?

His Russian what?

Soviet doesn't mean Russian anyway, Stalin was Georgian and Krushchov was Ukrainian (I think).