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Mysterious Personal Health Issue

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    Mysterious Personal Health Issue

    Hello contractor crew.

    I don't want to post this in 'General', as it's quite serious.

    I'm posting this here as I'm at the end of the road regarding an illness I have had for over two years. I'm sure I can't be alone with it and wondered if you could please compare this to yourselves or contractor friends who you know have had something similar.

    I've been a contractor for 8 years or so. I take the odd day off per month and have a few weeks holiday per year, probably 3 or 4 weeks total. There was a time when I was travelling worldwide on certain projects, but generally had a calm life, as the trips abroad were only occurring every 3 months for a week at a time. Two years ago, after about 6 months of increasing exercise (two to three gym classes a week, couple of runs) and overall pressure on myself to get fitter, I had a bad expercise. On a flight to Asia I had a small glass of champagne and, being small, had issue with the business class airline seat, which meant the lumbar area of my back was curved. Half an hour after the champagne I had some pain in the piriformis trigger area of my right back. I used some cushions and nodded off, as you do.

    I wasn't well whilst there and felt lethargic, tired; tried to go running but felt pretty bad. I didn't want to be there and couldn't wait to leave - big deal, it's only a single week.

    However upon my return the pain in my lower right back (attached picture) area was incredibly painful, so much so that I tried to do yoga to help it and other stretches. I found sleeping extraordinarily difficult and I think this induced some form of IBS. Had incredible back pain too in various area, particularly my left shoulderblade.

    Management has meant it's gone away, but I can no longer eat certain types of food without the pain flaring up to incredible levels in my right hip and piriformis area (inflammation, heat, rather than just pain felt alone) and my left shoulder-blade can be ridiculously painful, although helped by massage. Foods off the list are: wheat, dairy (never did like dairy though), alcohol, etc. I can accept that the food part is probably just IBS - that's fair enough. Perhaps post-infectious or placing too much pressure on myself over the years.

    The pain in my body though: that's not normal and is honestly crazy at times. From my middle spine outwards towards my shoulder blades and up to my shoulders regularly aches. My dentist has informed me that I appear to have 'bruxism', in which the teeth grind together during sleep, which has partially damaged by previously excellent teeth.

    The reason why I do not believe this is stress or simply IBS:
    I live alone, have a warchest I would never have thought imaginable and do not have children. I can exercise regularly, jog, hillwalk, road cycle and try to keep my spirits up.

    My right leg, as a result of the hip inflammation (presumabLy) can often be very stiff - I like walking long distances to shake off the stiffness, but I've noticed that sitting in a contractor desk job from a Monday to Friday, even with many breaks, is causing it to be far worse come the Friday. If it was sciatica alone, I do not believe food would affect it as well as other parts of the body being in pain. I am aware that 'fibromyalgia' can be caused by emotional trauma and also, primarily, lack of deep sleep, perhaps as a result of said trauma.

    I had an alcoholic father when a child, and used to clear up after him to avoid my mother and younger siblings being exposed to it. However I do feel that as this was when I was under the age of 14 I'm well over it now - I'm 30 years old.

    I've been to the NHS about this and had an MRI scan a year ago for suspected 'Ankylosing Spondylitis' or some form of undiagnosed rheumatism; but the MRI scan just showed normal wear and tear at the base of my spine and nothing in the right sacroiliac joint area (where most spondylathropies begin, including Crohn's disease and other HLA-B27 genetic related immunological disorders - it's all very interesting how HLA-B27 is involved with so many diseases.) I also tested seronegative for Rheumatoid arthritis.

    Being negative for these diseases is excellent, but it doesn't quite explain where this pain is coming from. My brother has had severe depression since being a teenager and is not quite the person he could be, even now that he is nearly 30 also. My mother's family appear to have a history of stomach issues too. I approached my doctor asking if this could be depression, but he seemed very certain it was not depression and that I was also not imagining it.

    There is zero chance that piriformis syndrome (as was originally suggested by the NHS) could be the sole cause of this, because it's not isolated pain. It is pain that gets better with exercise and not with rest - this is a red flag. One thing I could probably add is that when things get much worse it feels as if I start shaking, as if I am coming down with a fever. My blood pressure is fine by the way!

    I'm very fit, eat a wide varied diet and don't have liver dysfunction, thyroid issues nor diabetes. In fact I have no medically diagnosed issue that could be catered for. I don't drink, although do enjoy wine and ale, because I can't drink - it makes the pain and associated lack of sleep extremely worse. This has caused major issues with my social life, previous partner who I broke up with because of all this.

    If anybody has any ideas (apart from 'man up!') then I would greatly appreciate it, as it seems a very sad situation that is surely resolvable. I don't take medication and generally avoid painkillers most of the time as I'd rather solve the source of the pain than just dull it permanently. I'm in a good contract now which is walking distance from my house but still see that this could make me sad enough to not want to work for a while, as sitting still makes everything far worse. I don't obviously want to end working because of this; I shouldn't be feeling 70 years old when I'm 30.

    Thanks in advance.
    In possession of faculties. Almost.

    #2
    Not an expert in these things, but sounds like Fibromyalgia to me (personal exp)

    Visit a pain specialist and get the trigger/tender point test. That will provide a closer analysis and treatment (Pregabalin usually)

    If they diagnose it as FB, the good news is it won't kill you. You just have to live with it and manage pain.

    Yes, IMHO.

    PM me if you need any more advice or recommendations for a pain specialist. I hope you have Private medical insurance.
    Last edited by FatLazyContractor; 29 September 2015, 10:55. Reason: Added detail

    Comment


      #3
      Nobody can give you advise here regarding your heath but a proper doctor mate . I had severe intollerances and had to exclude most of the food from my diet. Have you tried low FODMAP ? You said you flare after food, so try that. And find another doctor, maybe go privately and pay to have all the tests done faster...

      Comment


        #4
        Gluten free diet sounds wise, also cut out MSG and sodium generally.

        Have you thought about a 2 week detox with plenty of fluids?

        As for hip to neck pain - thry all link up - and teeth grinding can kick it off. A gum shield and memory foam mattress topper for you!
        http://www.cih.org/news-article/disp...housing_market

        Comment


          #5
          Yeh I'd consider Fibromyalgia too. My Mrs has had it for a few years now and it really does fck you up big time.

          Bad new is its pretty much permanent. You've got to manage it with drugs etc.

          My mrs was off work for 2 years in the end. She's a nurse - had to quit her normal work and get something more suitable (still in nursing). Works part-time now but still struggles at times...
          Rhyddid i lofnod psychocandy!!!!

          Comment


            #6
            Originally posted by FatLazyContractor View Post
            Not an expert in these things, but sounds like Fibromyalgia to me (personal exp)

            Visit a pain specialist and get the trigger/tender point test. That will provide a closer analysis and treatment (Pregabalin usually)

            If they diagnose it as FB, the good news is it won't kill you. You just have to live with it and manage pain.

            Yes, IMHO.

            PM me if you need any more advice or recommendations for a pain specialist. I hope you have Private medical insurance.

            Thanks for the info - I did wonder about this and suggested it to the doctor upon a follow up visit after the major tests all came back clear. It seems quite a wide ranging neurological disorder. I was prescribed an interim tricyclic anti-depressant a year ago, which is useless for depression, but is excellent for nerve pain: amitriptyline 10mg, apparently the lowest prescribable dose possible. It didn't agree with me, but I was warned that as a fitness person I would likely experience some minor side effects.

            I don't have private health insurance and, given the tests in the past couple of years, would likely be charged extortionate amounts to maintain it. The NHS have actually been fantastic, it's just that I don't have a diagnosis yet. If I could go on with my daily life like a normal person that would be fine, but as it's interrupting things to such an extent I'm putting a lot of energy into solving it. I did leave it for a few months worry-free, but it just fluctuates and remains ever-present.

            Hope you have recovered significantly.
            In possession of faculties. Almost.

            Comment


              #7
              Thanks all.

              Regarding the diet: it is extremely strange. If I don't eat wheat (perhaps gluten?) then the pain does diminish somewhat, but not disappear. I've had three coeliac tests, which were all negative. I've never liked milk, so not touching dairy products doesn't bother me.

              I recall reading some years ago that fibromyalgia was essentially caused by lack of deep sleep, with multiple studies with military personnel indicating lack of sleep causes such symptoms.
              In possession of faculties. Almost.

              Comment


                #8
                Originally posted by dundeedude View Post
                Thanks all.

                Regarding the diet: it is extremely strange. If I don't eat wheat (perhaps gluten?) then the pain does diminish somewhat, but not disappear. I've had three coeliac tests, which were all negative. I've never liked milk, so not touching dairy products doesn't bother me.

                I recall reading some years ago that fibromyalgia was essentially caused by lack of deep sleep, with multiple studies with military personnel indicating lack of sleep causes such symptoms.
                i dont have celiac too , but the intollerance or IBS is broader than that. Thats why try to exclude whole FODMAP for 4 weeks and see if that helps?

                Comment


                  #9
                  Go private - you can afford it.
                  Blood in your poo

                  Comment


                    #10
                    Originally posted by Sausage Surprise View Post
                    Go private - you can afford it.
                    I thought so too, in fact I was even going to pay for individual treatments until I seen the cost of an MRI scan, CT, ad infinitum ad-hoc tests. It can quite easily run to six figure sums in no time. Also, the time between suspected diagnosis and tests were really quite quick - but I think more complicated illnesses with non-standard pathologies can mean somebody can experience more difficulty with the system of end treatment.
                    Last edited by dundeedude; 29 September 2015, 13:14.
                    In possession of faculties. Almost.

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